Category Archives: News

Columbus Celiac Disease Conference

Nationwide Children’s Hospital is hosting its 27th annual Celiac Disease Conference in Columbus on Saturday, Nov. 1, 2014.

Registration is required and cost is $45 for the all day conference which includes a GF continental breakfast and GF lunch. Parking is $2. No Walk-ins allowed.

There are separate educational tracks for children and teens, speakers, and a vendor fair of about 10-20 vendors. Dr. Ivor Hill will speak as well as registered dietitians.

To register call 614-355-0662 or online.
It’s a bit tricky to navigate their website, so….
1) Click here: http://www.nationwidechildrens.org/about-celiac-disease
2) In far right column under resources, click “Visit the Education site”.
3) Under the keyword search, type in “celiac”, click “search classes”. Conference link is the second choice. Click.
4) Conference details pop up and you register at the bottom.

Other conferences can cost $100 or more. Columbus conference rates are one of the best deals in the US. Register today before it is sold out.

The Gluten Free Labeling Law in Effect August 5th, 2014

The Gluten Free Labeling Act has gone into effect as of Aug. 5th, 2014. Food labeled gluten free must not contain more than 20 parts per million of gluten or suffer a penalty. Labeling is voluntary, so those on the gluten free diet still need to read labels on undesignated packaging. There is hope that the gluten free designation will apply to restaurants that offer a gluten free menu, but the FDA has not commented on enforcing standards. Groups like the American Celiac Disease Alliance are following up with the FDA.

The final rule applies to all FDA-regulated foods, but EXCLUDES foods whose labeling is regulated by the US Department of Agriculture and the Alcohol and Tobacco Tax and Trade Bureau, such as most meats, poultry, certain egg products and most alcoholic beverages. The USDA and TTB however voluntarily may follow the FDA GF standards on many products. On alcohol made from prohibited grains, then rendered gluten free with enzymes, the TTB states:

“Consistent with the new FDA regulations, TTB will continue to consider “gluten-free” label claims for alcohol beverages that are made from gluten-containing grains to be misleading to consumers who are seeking to avoid the consumption of gluten for health reasons. However, products made from gluten-containing grains may be labeled with a statement that the product was “Processed,” “Treated,” or “Crafted” to remove gluten, if that claim is made together with a qualifying statement that warns the consumer that the gluten content of the product cannot be determined and that the product may contain gluten.”

Neighborhood Butcher Shops are Great for Gluten Free

The neighborhood butcher shop is coming back, and that’s good news for the Greater Cleveland GF Community. Smaller shops mean you can ask where meat comes from, what exactly is in the meat, and in some cases, if the animals have been raised humanely.
Saucisson (prepared at the Cleveland Culinary Launch Kitchen) sells their sausages and pork at Farmers Markets.
The Butcher & the Brewer (find them on Facebook) is a butcher shop, brewery and restaurant, now open on E. 4th St.
The Sausage Shoppe in Old Brooklyn knows gluten free. Look for the Meat & Curing Co. to open soon near the West Side Market, headed by Adam Lambert formerly of Bar Cento.

GF Food and Airport Security

Can you take gluten free food on an airplane in your carry on bag?
Jane Anderson from celiacdisease.about.com did a great job summarizing GF airplane travel:
The TSA should allow any form of solid food, although it will have to go through x-ray. Gluten-free items such as cookies, brownies, pretzels, chips, crackers and dry cereal, chicken, roast beef, ham, as well as fruit & GF bread should be allowed through security.

If it is liquid or gel-like (i.e. a dip, a spread, a dressing or even gel packs) it is more of a problem. These things aren’t banned, but only 3 oz. of each is allowed and must fit in 1 quart sized zip lock bag along with your toothpaste, shampoo, etc. Read more from celiacdisease.about.com

Store Brands are Going Gluten Free

…And Some Mainstream Companies are Adding GF versions!

1) Walmart has a line of gluten free products from their Great Value line.
2) The Fresh Market chain also has their own line of GF products. In Shaker Hts., there is one at 20233 Van Aken Blvd.
3) Meijer has its own GF pasta
4) Giant Eagle has its own GF version of Corn Chex
5) Aldi’s has increased their gluten free offerings and are actively advertising them.
6) Freschetta brand now has 2 certified GF pizzas: Four Cheese Medley, and Pepperoni, both are thin crust and were spotted at Kroger’s for $9.99.
7) Breton Crackers now has 2 GF flavors: Original with Flax and Herb and Garlic, certified GF.

If you spot any other stores doing the same, please reply and let our members know. Tell us which ones you like and which ones to skip. We’d love to hear from you!

Chex Oatmeal

From Joan:

Chex Gluten Free Oatmeal is available at Marc’s – 2/$5.

Chex Oatmeal

 

Diane adds:

The packaging is labeled “gluten free” but the ingredient listing just says “whole grain oats”.

So, I was unsure whether pure gluten free oats were used in this product.

A statement on the company’s facebook page is reassuring:

The oats used for the oats & oatmeal products are sourced from a vertically integrated gluten free oat source. We also validate our cleaning and changeover methods at the plants for any system/line that will run a gluten free product. Ongoing verification gluten testing is performed at the finished product level. As such, any General Mills product that contains a “gluten free” claim meets the safety and regulatory definition of less than 20 ppm. While there are many “gluten free” certification bodies, General Mills’ standards meet and/or exceed the qualifications defined by these organizations. Therefore, you can be confident that our “gluten free” products are safe and meet global certification and regulatory standards.

Have you tried it? Have you seen it in other stores?

Is Omission Beer Gluten Free?

Laurie wrote in the 6/1/14 NEOCN newsletter:

Omission beer is a barley based beer. It cannot be labeled as gluten free by the TTB or FDA because its source is a prohibited grain (barley). Enzymes are added to break down the gluten after brewing. The test used by Omission to see if there is any residual gluten is the Competitive Elisa Test which is a controversial test.  So when Omission says the beer is under 20 parts per million, the results are in doubt because the test is in doubt by experts. Tricia Thompson MS RD, “The Gluten Free Dietitian” states: Experts who I trust immensely agree that they can NOT say for certain at this point in time whether Omission beer is safe for people with celiac disease to drink based on the data that  has been released by Omission.” Please read: https://www.glutenfreewatchdog.org/reportUploads/Gluten_Removed_Barley_Based_Beers_Jan_14.pdf

Dr. Fasano seemed to agree with Tricia Thomson when he stated that  “the purpose of the R5 ELISA is to test for cross contamination with naturally occurring gluten, not gluten that is artificially manipulated or degraded by an enzyme.” (Credit: Celiac Community Foundation of Northern California)

I know many might have an emotional reaction to hear this news. What further complicates this is that stores like Heinen’s or Giant Eagle may have a display of Omission beer in their gluten free aisles. Please question Heinen’s or Giant Eagle on this choice; and before you purchase, please look into this issue so you choose the gluten free beer that is safe for you.

Welcome! A New Name and a New Website!

Welcome to our new website… and “pardon our dust”, as we tinker to better serve the celiac/gluten free community. Formerly a Chapter of the Celiac Disease Foundation, we are now the Northeast Ohio Celiac Network (NEOCN), recommitting our energies to local needs. More visible on your mobile and tablet devices, this website is also now interactive! Please talk to us through your comments at the end of any post! Let us know (and let your fellow members know) about your local gluten free experiences! Together we can make Northeast Ohio gluten free friendly.

Zumbathon

May 9th, 2014 Zumbathon was a wonderful success! Pictures above are the Zumbathon teachers that volunteered their time to raise funds for both the Celiac Disease Foundation and the NEO Celiac Network! Pictured are also Judy and Marylou passing out gluten free goodies and having a great time!