| Websites celiac-disease.com Has a full team of writers that adds variety to the site CeliacDisease.About.com Food Allergen Labeling Act Original wording NIDDK- CD National Institute of Diabetes, Digestive and Kidney Disease has an authoritative section on celiac disease Connie Sarros (Cookbooks) Gluten Free City Guide Map pinpoints a city's GF resources Celiacs in the House A blog, but has much GF college info |
| Celiac Disease Centers University of Chicago Columbia University University of Maryland Dr. Fasano's Scientific American Article August 2009 Celiac Sprue Clinic Allegheny Hospital, Pittsburgh, PA Kathy Sepesy @412-359-8956 for more information or to schedule an appointment. Celiac Center at Beth Israel Deaconess/ Harvard Medical School Celiac Center at Children's Hospital Philadelphia Kogan Celiac Center New Jersey Mayo Clinic Celiac Center William K Warren Medical Research Centerfor Celiac Disease, California |
| Celiac Disease... ...is an autoimmune disorder which affects many organs in the body when untreated. It commonly affects the small intestine and results in an inability to absorb nutrients properly. Once thought to be rare, research now indicates that celiac disease (CD) affects 1 in 133 people in the U.S. and is considered to be widely under diagnosed. Complications of undiagnosed CD include anemia, osteoporosis, fertility problems, and malnutrition, to list a few. Symptoms of CD may be gastrointestinal or seemingly non-intestinal. Symptoms may include anemia, constipation, diarrhea, malnutrition, weight loss, bloating, lactose intolerance, skin problems, dental enamel defects, failure to thrive, and muscle wasting. Some people have no symptoms whatsoever. CD is a multi-system, multi-symptom disorder. The sole treatment for CD is a lifelong, stringent "gluten-free" diet (GFD). Commonly referred to as "gluten", proteins which come from wheat, rye, and barley are harmful to people with CD and result in an autoimmune response when ingested. In time, this response results in damage throughout the body. Wheat, barley, & their derivatives are abundant in the American diet, so the GFD is challenging - but necessary. Upon diagnosis, it is crucial for patients to receive education by a registered dietitian with knowledge of CD and the GFD. It is important to receive a firm diagnosis before beginning treatment for celiac disease. Trisha Lyons, R.D., L.D. MetroHealth Medical Center, Cleveland |
| Websites That Also Offer Newsletters About.com:Celiac Disease GF Lifestyle articles Celiac-Disease.com Cutting edge, Tiffany reviews gluten free products by taste testing. Her new blog gives Atlanta GF info, but also national GF product news. Click here Digestive Health Smart Brief Authoritative Gastrointestinal news Free |
| Health Care Professionals Registered Dietitians Trisha Lyons RD. LD. MetroHealth Medical Center Group Advisor Brenda Shapiro, RD, LD 440-785-1564 bshapirordld@sbcglobal.net Pharmacist: Steve Plogsted R.Ph. Gluten Free Medication List A comprehensive GF medication list. www.glutenfreedrugs.com |
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| Ingredient, Label Reading San Diego's Product List Scroll down to Food Category Table Many mainstream GF brands Updated yearly San Diego's Confusing Ingredient List 17 ingredients reviewed and reasons given if GF Tricia Thompson MS RD One of the best for clear authoritative diet information Gluten Free Living Magazine's List GF Living Magazine examines controversial/confusing ingredients |
| Specialty Sites General Mills 250+ GF Products Triumph Dining Traveling? Purchase GF dining cards in any language www.glutenfreefox.com Gluten Free Search Engine Laurel Run Cooking School Gluten Free Cooking Classes in Vermilion Loretta Paganini School of Cooking Gluten Free Cooking Classes in Chesterland Ed Stewart Gluten Free Cooking Classes Lorain County Joint Vocational School, Fall 2010. More for 2011. |
| Video No time to attend a reputable celiac conference? Need to learn more? Comprehensive Celiac Video! Physicians and Dietitians speak on testingand GF ingredients! 50 minutes total----10 short topics. Choose the topic you'd like! SEE VIDEO HERE Sit down, have a cup of coffee, and go to: University of California at San Diego Celiac Disease Center, 11/2010 2009: http://youtube.com/watch?v=QR2LvQmoF1Y |
| Diabetes and Celiac Disease Quick Overview of the Balance between Conditions Balancing the Diet: http://celiacdisease.about.com/od/medicalguideli nes/a/GlutenFree Diabetics.htm?nl=1 The Link Between Both Diseases: http://celiacdisease.about.com/od/symptomsofce liacdisease/a/CeliacDiseaseDiabetes.htm?nl=1 |
| The Listserv The Listserv at St.John's will allow you to post or read gluten free questions or comments. It is a national and international kind of electronic bulletin board.If you subscribe, be prepared to receive 20 emails/day or set it up to receive one link with the day's email. Archives are also a valuable resource. Join LISTSERV Click here for Listserv Archives Then click email list tab & scroll down to celiac. The archives detail past discussions |
| National Celiac Organizations Celiac Disease Foundation (CDF) One of the leaders. National Foundation for Celiac Awareness (NFCA) Info for beginners to experts Gluten Intolerance Group (GIG) Known for certifying restaurants Celiac Sprue Association (CSA) Largest and oldest support group American Celiac Disease Alliance They helped pass the allergen labeling act, identifying the 8 top allergens. National Institute of Health- Celiac Awareness Campaign Wonderful government resource Celiac Disease Forum Discussion |
| Cooking Substitutions http://www.livingwithout.com/resources /substitutions.html |
| Newly Diagnosed Resources Celiac Disease Foundation Quick Start Guide 2 pages Or website www.celiac.org National Foundation for Celiac Awareness: Getting Started Guide Practical and Printable. 24 pages. Suffolk County Celiacs Getting Started Booklet Great for the newly diagnosed! Written by a New York Chapter of the Gluten Intolerance Group. Printable. Gluten Intolerance Group Printable Guides Getting Started and more! Northeast Ohio Celiac Support Group Your local resource guide! Receive announcements by EMAIL Introduction to the Gluten Free Diet by www.celiac-disease.com Ask the Dietitian Dietitians Melinda Dennis & Nancy Dickens NFCA service updated every Tuesday |
| Religious Catholic Communion Wafers low gluten St. Paul's Episcopal Church, 2747 Fairmount Blvd, Cleveland Hts. now has gluten-free communion wafers available at all services. A separate chalice of wine that has not had wheat wafers intincted in it is also provided. |
| C ---Consultation with a skilled dietitian, E------Education about the disease, L ----Lifelong adherence to a gluten-free diet I -----Identification & treatment of nutritional deficiencies, A ---Access to an advocacy group, and C ----Continuous long-term follow-up. -NIH Consensus 2004 |
| Information on Celiac Disease and the Gluten Free Diet Links are Underlined |
| Books Gluten Free Diet Shelley Case The Gluten-Free Nutrition Guide Tricia Thompson MS RD Celiac Disease: A Hidden Epidemic by Dr. Peter Green Recognizing Celiac Disease |
Mainstream Manufacturer's Gluten Free Lists
Mainstream GF products can change formulations at any time, without notice. If you choose a mainstream grocery item because you saw it on a GF list, recheck the
ingredients. The lists below were made by the company, and are as current as was possible to obtain. Some lists update themselves automatically, some do not. First thing
you should do is check for a date.
General Mills
300+ GF Products by General Mills. This link takes you to the General Mills GF product list, but the website is an online GF store run by the company. Recipes, coupons,
celiac information, GF lifestyle advice, product locator and much more--this site is a gem.
Nestle List
Candy, Morsels, juices, energy drinks that are GF.
Frito Lay
Lay’s has 2 lists. One list the company tests for below 20ppm of gluten!
The other list says items do not contain gluten, but they may be manufactured on the same lines as products that contain gluten. “Although lines are cleaned between
production runs, Frito-Lay has not tested these products for gluten content and the ingredients in these products may have come into contact with gluten-containing
products prior to manufacturing. Individuals who are sensitive to gluten should take these factors into consideration in consuming these products.”
Please note: The information provided pertains only to products made and distributed in the U.S. Products sold in other countries under similar brands may be made using
slightly different recipes and ingredients to accommodate local needs and preferences.
http://www.fritolay.com/your-health/us-products-not-containing-gluten-ingredients.html
Campbell’s
Most soup is not GF. GF List includes broth, juices, Prego, Pace, V* choices
http://www.campbellsoupcompany.com/pdf/FAQ_GlutenFreeProductList.pdf
Hormel
A variety of brands made by Hormel: Chi Chi, Jennie O’s, Always Tender, Farmer John, Herb Ox
http://www.hormelfoods.com/brands/glutenfree/default.aspx
Mainstream GF products can change formulations at any time, without notice. If you choose a mainstream grocery item because you saw it on a GF list, recheck the
ingredients. The lists below were made by the company, and are as current as was possible to obtain. Some lists update themselves automatically, some do not. First thing
you should do is check for a date.
General Mills
300+ GF Products by General Mills. This link takes you to the General Mills GF product list, but the website is an online GF store run by the company. Recipes, coupons,
celiac information, GF lifestyle advice, product locator and much more--this site is a gem.
Nestle List
Candy, Morsels, juices, energy drinks that are GF.
Frito Lay
Lay’s has 2 lists. One list the company tests for below 20ppm of gluten!
The other list says items do not contain gluten, but they may be manufactured on the same lines as products that contain gluten. “Although lines are cleaned between
production runs, Frito-Lay has not tested these products for gluten content and the ingredients in these products may have come into contact with gluten-containing
products prior to manufacturing. Individuals who are sensitive to gluten should take these factors into consideration in consuming these products.”
Please note: The information provided pertains only to products made and distributed in the U.S. Products sold in other countries under similar brands may be made using
slightly different recipes and ingredients to accommodate local needs and preferences.
http://www.fritolay.com/your-health/us-products-not-containing-gluten-ingredients.html
Campbell’s
Most soup is not GF. GF List includes broth, juices, Prego, Pace, V* choices
http://www.campbellsoupcompany.com/pdf/FAQ_GlutenFreeProductList.pdf
Hormel
A variety of brands made by Hormel: Chi Chi, Jennie O’s, Always Tender, Farmer John, Herb Ox
http://www.hormelfoods.com/brands/glutenfree/default.aspx