Northeast Ohio Celiac Network

October Columbus Celiac Conference

Why attend? Three different sessions for adults, teens and children. Sign up the whole family! Speakers, gluten free vendors, presentations, education materials, activities, exhibits and gluten free lunch. Key Note Speaker: Dr. Guandalini from the University of Chicago Celiac Disease Center
Date: Saturday October 31, 2015
Time: Check-in begins 7:30 a.m. General session begins 9 a.m. Program ends 3:30 p.m.
Location: Nationwide Children’s Hospital, 700 Children’s Drive, Columbus, OH
Cost:: $35 for adults and teens for registrations postmarked by September 18. After that date the registration fee is $45 per person. Children under 12 attend free. Payment can be made by cash, check, Visa or Master Card.
Registration: Online, by mail or by calling the Education Department at 614-355-0589.
Online registration: 1) Click on the link below 2) Click for info on education programs 3) Enter “celiac” in keyword search. Register online here.
NO WALK-INS. Everyone at the conference must pre-register. Early registration is recommended. This is a great event for all Ohioans! Registration fee is reasonable because it also includes a GF lunch. Compare to other events in other cities!

Attend the Columbus Celiac Conference. Do something wonderful for yourself & your family!

The Celiac Project and How Kickstarter Helped.

The Celiac Project is a dynamic, first-of-its-kind hour long documentary about life before and after the diagnosis of celiac disease. The inspiration for this film came after the director and Evanston native, Michael Frolichstein, struggled with a series of “mystery aliments” before finally being diagnosed with celiac disease at age 40. Michael was shocked to learn that this auto-immune disease, which affects 1% of the US population, is 83% undiagnosed or misdiagnosed. His journey to meet others who had suffered, as well as get answers from experts, led him to Kickstarter, a public internet funding site, where he raised $35,000 last summer to produce and take his documentary on the road. He’s already piqued the interest of Boulder Brands (owners of Udi’s and Glutino) who hosted his premier in Colorado this spring and who want to sponsor snacks at future screenings. Then, a couple of weeks ago, his hometown library in Evanston Illinois hosted a screening with the filmmaker and a medical panel for a lively Q&A.

The documentary ultimately explores what we can do individually and as a society to advance the conversation and raise awareness about the disease. Learn more at:
Video: See a trailer of the film here
Read: Evanston newspaper article here

GF Lex: Strange Ranges – Common Vitamin Deficiencies in Celiac Disease

By the end of 2014, I was feeling decidedly… weird.

Diagnosed with celiac disease 12 years ago, I was accustomed to the odd, painful sensations and myriad systemic disruptions that come with accidentally ingesting gluten. As a patient who also bears additional autoimmune diagnoses (Ulcerative Colitis and autoimmune autonomic nervous system damage), I am likewise used to flare-up symptoms, to localized and generalized pain, to low-grade fevers, and to the ever-present “brain fog” that has integrated the word “huh?” into my expansive vocabulary far more frequently than I had ever dreamed possible. But by the conclusion of last year, something was definitely askew, well outside the norm of my decidedly abnormal physiology.

Dog-tired, disoriented, and weak, I stumbled into my physician’s office one afternoon to have some tests run. A few days later, I received the results I had been waiting for.

“This is pretty bad,” I remember the nurse saying, my vision blurring as I gazed across my bedroom with the phone to my ear. “We’re going to have to shoot you.”

Continue reading GF Lex: Strange Ranges – Common Vitamin Deficiencies in Celiac Disease

What You Are Saying

Please add your comments to keep our information up-to-date.

Have you found a new restaurant or product or have a recipe to share? Tell us about it.