Northeast Ohio Celiac Network

International Celiac Symposium: Prague, June 21-24, 2015

Four members of our steering committee will be representing our group in Prague, capitol of the Czech Republic, at the International Celiac Symposium. We wish Diane, MaryLou, Judy, and Anne safe traveling and hope they will share what they learned when they return! Much Good Luck!

Since the late 1960’s, researchers, physicians, and medical professionals worldwide have hosted an International Celiac Symposium, and have met to exchange their research. The interested countries were primarily the United Kingdom, Scandinavian countries, and Italy. The USA hosted its first celiac symposium 30 years later in 2000. We have been “late to the game” but have caught up as hosts with the last symposium held in Chicago in 2013.

Who will be speaking from the USA?
Dr. Fasano (Boston), Dr. Guandalini and 3 colleagues (Chicago), Dr. Murray (Mayo Clinic), & Dr. Ben Lebwohl (NY) will speak, representing American celiac research.

Why have a symposium?
“Coeliac disease, even more than 60 years after the invention of jejunal biopsy and decades after the discovery of the sensitive serologic tests, remains very often undiagnosed, underestimated and poorly understood. The issue is becoming even more obscure by a rapid change in clinical presentation. The typical picture of steatorrhea has often been replaced by hidden and confusing extra-intestinal manifestations. Questions will be raised and challenged by an exquisite spectrum of world renowned experts and young investigators. The meeting will uniquely reflect joint interests and needs of scientists, clinicians, patients, and nutritionists. It will also attract drug producers, health care providers and organizers because screening and diet promotion are important tools of the disease management. We believe that Prague as usual will provide a friendly and functional background to the congress with a unique and inspiring atmosphere.” –per ICDS organizers 2015

GF Lex – My Summer Crush on Jam Gluten-Free Bakeshop

The first breeze of summer sparks something unique in each of us.

The primal awakening, however, the closing of our eyes, the deep inhalation as the nearly-forgotten wind caresses us once more, remains universal. Summer tends to incite a hunger in us, it inspires a search for something deeply desired.

When that breeze hit me this year, I realized almost immediately that I needed something. And though I was not sure what at the time, I knew that it was something satisfying, something stunning. Something tempting, something tantalizing. Something my heart understood before my head could even discern its motives. I realized only after the road began unfurling behind my little red sedan like a great gray river that I knew, that day, where my impromptu one-tank trip was taking me. A place I wanted it to take me more than anywhere else in the world.

Not to the beach, glowing with sun and seduction, not to the bar and grill, pulsing with song and spirits, not to any other hub of symbolic summer romance. The sweetness I craved I knew would be fulfilled in only one place. At Jam Gluten-Free Bakeshop.

Jamwindowandbanner

At the NEOCN Vendor’s Fair in April, I had experienced the pleasures of this establishment for the first time, though its reputation had preceded it. I had spent weeks admiring (Well, alright. Ogling.) the tantalizing photographs on Jam’s Facebook page, images of such a shifting array of exemplary baked goods that by the time I actually had the pleasure of meeting the proprietors of this lovely shop, the first (and only) words out of my mouth were a heartily sighed, “Oh, Jam…”

Let me introduce you to my summer crush. Continue reading GF Lex – My Summer Crush on Jam Gluten-Free Bakeshop

GF Lex: Eat Your Words – An Introduction to Gluten-Free Blogs, and Four Exceptional Examples

In the celiac universe, the profusion of gluten-free products is constantly expanding. We now have access to almost every conceivable type of prepackaged food in several forms, from several brands. And several of them are actually palatable (and affordable).

For those of us who choose to venture into the world of gluten-free cooking and baking, however, a slew of daunting obstacles still looms before us. Initially you may feel as if you’ve landed on another planet in which the laws of physics no longer apply to your space-age flours, and in which you no longer recognize your seemingly NASA-copyrighted ingredients (xanthan gum, anyone?). Alternately, you may believe you’ve plunged down the rabbit hole, and that the brown cube served on a tea tray before you that looks like a brick, feels like a brick, and frankly, smells like a brick, cannot possibly be food, despite the “eat me, I’m gluten-free bread” tag riveted firmly to its side. What is a gluten-free baker to do to bring one’s cooking back through the wormhole and onto this temporal plane?

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The world of gluten-free blogging has expanded equivalently, and the Alice-like disorientation people with celiac disease can experience here can become quite curious indeed. Continue reading GF Lex: Eat Your Words – An Introduction to Gluten-Free Blogs, and Four Exceptional Examples

Gluten Free Summer Tips

Traveling in the USA?
Would you like to know where 100% gluten free restaurants and bakeries are by state?
Go to 100% GF Restaurants/Bakeries Here.

Taking in an Indian’s game at Progressive Field?
Head for the concession stand behind section 163.
Here is the link.

Want to avoid cross contamination when grilling at home or away?
Go to GF Grilling Here.

Need to find gluten free ice cream brands?
Go to GF Ice Cream Brands Here.

Looking for GF Hot Dog Brands?
Go to GF Hot Dogs Here.

What gluten free summer tips can you share?
Happy summer!

Restaurant Updates

  • Pizza Hut Local and Multiple Locations Nationwide.
  • Pizza Hut Offers GF Pizza multiple locations
  • Bomba Tacos and Rum Rocky River
  • Revolution Pizza revolutionpizzaonline.com 1075 E 305th St. Wickliffe, OH 44092 (440) 944-4412 The website menu lists gluten-free items that include select sandwiches including burger, fish, chicken and fries!!  And Pizza too:)   our webpage guest Rob writes: Revolution pizza.   Good gluten free dough –  sauce needs a little more spice.
  • J. Gumbo’s Cleveland/Public Sq. E. 4th, Independence Rockside Road

New GF Products

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